Making Precious Strides hosts various community events throughout the year to raise awareness of Hunter Syndrome. Most of the events are also fundraisers for our organization but primarily focus on educating the local community about this rare, life-threatening disease. Here is a list of some of the events that we are hosting or are being held to benefit our organization.

ZachFest 2012

Contact Information: Jenna DeCicco
Phone: (609) 513-5314

ZachFest, one of the group’s primary fundraisers, is a fun-filled family event featuring food, drinks, music, auction, prizes, and kids’ games. This year's event is scheduled on Sunday, July 12 at the Log Cabin in Margate, NJ from 4 p.m. to 8 p.m. The event will feature the cover band Seven Stone. Tickets can be purchased in advance for $20/adult and $10/child or at the door for $25/adult and $10/child. Proceeds benefit medical research.

View last year's coverage on NBC Channel 40

Zach's Run WNY - 2012

Contact Information: Cheryl Dearth
Phone: (609) 513-4029

The 2nd annual Zach's Run will be held in the 2012 in Fredonia, NY. The event hosts a 5k run, 1-mile family fun walk and children's activities including a Tot Trot and other children's activities. For more information or to register, visit

Future Events

If you or your organization is interested in scheduling an event or would like to discuss fundraising or educational opportunities for MPS II (Hunter Syndrome). Please contact Aly Koch or call (609) 513-4029.